Princess Talana's Kingdom

In March, I got the flu. April 1st, I went to the ER at Stanford and ended up in the ICU, fighting to live. I have been listed for lungs and...

So, testing is all done! Well, except for a pesky 24 hour pee collection, but I'll do that next week. So, the verdict is that it is st...

I know it has been forever since I have posted. I'm trying to change that. Especially as my life is in a major transition now. As has ...

Today's CF Clinic was interesting. For a few years now, my FEV1 (a measure of how much air can be pushed out in the first second) has ...

I know where I was a year ago. Standing on the Hoover Dam, when I got the phone call... Eva was gone. I knew it was coming, despite my gre...

We have employment! An update on the major changes in our lives to come soon! Bad times here at the Fairfax household. As of Thursday, Matt...

Dear Eva, 7 months since you left this world. Tonight another cystic friend left this world. Invite Gess to the party... he may be shy at fi...

I made this lovely hat with yarn that was graciously given to me by the lovely people at Crystal Palace yarns. I love the mochi line, with ...

Didn't go so great. Despite being up 10 lbs, which should be cause for celebration, my PFTs were down 5%. Under 30%. They wanted to a...

I hate CF. When I can't breathe. When friends die. When the bills are too much to pay. But nothing is greater than the rage, sadness, an...

I'm already planning my 30th birthday. It doesn't matter that I'm yet to turn 29, or even 28 for that matter, I'm already t...

This weekend was a study in all the parallels of the CF world. Of all the intrinsic parts of holding on to fleeting moments. I traveled to ...

When you sit at home all day, unable to work, and your only vehicle with your husband at work, you have a little time on your hands. So you ...

It's taken me a few days to be able to even write anything. To even process. The weight of you being gone, it just sucked the air out o...

I have a lot of little news bits... *started on night time oxygen, and I'm loving it *changed enzymes to zenpep, hoping this will addres...

When I was a very little girl, I thought that since both Heaven and Washington were up, that clearly, when I looked at the sky, I was lookin...

A CF mom blog broke my heart today. The comments in it broke my heart further. Moms who plan on not telling their young CF kids that CF is...

Today Ginger was supposed to turn 29. Instead, her young son and devoted husband spend their first January 27th without her. By all measure...

I had my first visit today with the Las Vegas clinic... something major for me, since I've never seen anyone for my CF except for the do...

My friend Sarah, posted a link to this blog written by a breast cancer survivor about the recent meme that has swept through facebook. The...

a hard while. Several friends have died of CF. Close friends... ones that I'm not sure I am even ready to process their passing, and am...

Less than a month until the big move! - Posted using BlogPress from my iPhone

Please pray for my Eva tonight... she's in the hospital, not able to breathe... she needs new lungs. 2 year post transplant they are f...

Means wiggly cuddle time in Itsa's world. - Posted using BlogPress from my iPhone

I have been terrible about my treatments lately.

Lizzie is my official neb and vest buddy. She will come running when she hears me start and will hide under my blanket, curl up on my lap, o...

Tonight will be quick, since I am already in bed. I do have to say that I really do have wonderful friends. I often struggle with the insecu...

Already this month we've lost two in the CF community... two... and we're barely 5 days in. Will 's journey is one that I'v...

So I missed yesterday... I chose to believe that the 3rd of November never existed. Today, I had an adventure... I went to my local H1N1 sho...

One of the many things to happen during my neglect of the blog was finding a new and wonderful little kitten! Our house backs up on a small ...