Miracle in Motion!

I woke up this morning, scared to check one of the blogs of my Internet friends who I have spent time chatting with at Cysticfibrosis.com. Gina a.k.a. Pepe has been very sick for a long time, with frequent absences from the nightly chat room brought by needing the vent again, or simply needing all of her energy just to breathe. I don't even know how long she's been in the hospital, but I know that she's been in for a very long time, waiting for a transplant, hearing the transplant may not be an option, and fighting just to live. All the while she maintained a wonderful spirit that I loved in the chat room.

Yesterday, my heart broke as I read the latest entry. I prayed for one more chance, for Gina to step past death one last time. I never imagined that THE CALL would come, that that is the first news that greeted me this morning. God came through greater than my biggest prayers. She still has a long road. Surgery is not even done, and her life hangs by a thread, in the hands of the surgeon's, guided by God.

My Contract With My Readers

So tonight I was thinking about where I want to take this blog... its purpose. I've known from a young age that one of my most powerful tools in combating CF was to share my story. I've found amazing support, generosity, friendship, and love in doing so. This blog is going to be my mouthpiece... a window on the world of cystic fibrosis. I'm at a point in my life where I am teetering on falling into increased sickness, and I want to take as many people down that rabbit hole with me. I've had incredible experiences in my life... many of them directly due to my CF. I will share the past here. Let the world know that CF kids can grow up strong and happy, go to college, live out their dreams. Let the world know that we are still dying, that far too many dreams are cut short, that life is full of pain as well as joy.
I want to share this all. And I want to share it with as many people as possible. Please link me, please comment (Thank you Meredith, my first comment. Your prayers are appreciated). As a teacher I know that the world is changed one person, one lesson, one iota at a time. This is the first drop.

Linkage

I've set up some links on the right side of the page. Please visit the CF family one. They can use all the prayers they can get right now. Go, read their story... you will become addicted. I also have a link to my Great Strides CF Walk fundraising. I have not officially kicked off my fundraising yet, but I am all set up to accept donations or people to walk with me. I would love to have people join me :) Next is the main page for the CFF website and last is my own personal LJ. I hope to add more links soon.

Please comment, I'd love to hear the people that are here! :)