I know, I'm a terrible blogger!
But life has been pretty good over here. It took me awhile to physically recover from our trip, especially the unexpected monkey wrenches with staying overnight, especially in the thin air of Salt Lake City.
But I do have some amazing news...
In April, Matt and I will be going on a cruise! My lovely, wonderful, amazing, God sent husband, got us a cruise from South America to San Diego for my Christmas gift... I can't wait, and as an incentive to blog, I'll be writing more later.
Showing posts with label update. Show all posts
Showing posts with label update. Show all posts
Tuesday, January 27, 2009
Sunday, December 7, 2008
Hiya!
I know I have not posted about my health in awhile, so I'll be doing that, after I make a few random musings!
First, as to my last entry, Carleton University did reinstate the CF Fundraiser. This, however, was not the biggest issue in my mind. It was the terrible spirit in which it was removed, the lack of research that went into it, and the lack of foresight by the students of the board to not realize how badly the motion would reflect upon them. The writer of the petition has since resigned, but it took nearly a week before any real apology was issued by any of the principle people involved. That to me is disgusting. But I digress...
On the non-health front, life it pretty darn good. My roommate Richard moved out, leaving just Matt my husband, myself, and our roommate Tyrone. A change, both good and bad. Thanksgiving was at my house, celebrated by Matt, Tyrone, my parents, my Grandma Vickie, and my Great Aunt Flora and her daughter Susan. Food came out very well, and then I spent 14 hours sleeping off my hard labor :) This Christmas will find Matt and I, along with my parents and sister in South Carolina at Matt's family. It will be the first time that they've really met, as only Matt's mother and aunt were able to make it to our Reno wedding. I am so excited for this trip, as the days tick ever closer. I love Matt's family so much and I'm so happy to see them and have one big meeting of people that I hold near and dear to my heart.
On the health front...
The last several weeks have been tough. I've not been well, but I've not been sick. It started with a severe cold a few weeks ago, that settled in my chest. I was never sick enough to say "I'm sick and I need antibiotics", but I was also never well enough to really feel good. With our upcoming trip, I decided that if I was not in top form, I'd get really sick, so I went on oral antibiotics and prednisone last week. I feel a lot better... better than I've felt in a few weeks :) Pray that my body can handle the long trip and the stress that undoubtedly comes from being away from the home environment.
First, as to my last entry, Carleton University did reinstate the CF Fundraiser. This, however, was not the biggest issue in my mind. It was the terrible spirit in which it was removed, the lack of research that went into it, and the lack of foresight by the students of the board to not realize how badly the motion would reflect upon them. The writer of the petition has since resigned, but it took nearly a week before any real apology was issued by any of the principle people involved. That to me is disgusting. But I digress...
On the non-health front, life it pretty darn good. My roommate Richard moved out, leaving just Matt my husband, myself, and our roommate Tyrone. A change, both good and bad. Thanksgiving was at my house, celebrated by Matt, Tyrone, my parents, my Grandma Vickie, and my Great Aunt Flora and her daughter Susan. Food came out very well, and then I spent 14 hours sleeping off my hard labor :) This Christmas will find Matt and I, along with my parents and sister in South Carolina at Matt's family. It will be the first time that they've really met, as only Matt's mother and aunt were able to make it to our Reno wedding. I am so excited for this trip, as the days tick ever closer. I love Matt's family so much and I'm so happy to see them and have one big meeting of people that I hold near and dear to my heart.
On the health front...
The last several weeks have been tough. I've not been well, but I've not been sick. It started with a severe cold a few weeks ago, that settled in my chest. I was never sick enough to say "I'm sick and I need antibiotics", but I was also never well enough to really feel good. With our upcoming trip, I decided that if I was not in top form, I'd get really sick, so I went on oral antibiotics and prednisone last week. I feel a lot better... better than I've felt in a few weeks :) Pray that my body can handle the long trip and the stress that undoubtedly comes from being away from the home environment.
Monday, August 25, 2008
Update a Long Time Coming
I know I haven't posted forever. Honnestly, I don't have a good reason at all. I haven't been in a depressive hole that keeps me from updating. I've been busy, but not every single day. Life has just settled into a comfortable pattern, and for some reason writing just seems nearly impossible.
I had a good birthday... that was over a month ago. I had a good visit with the diabetes doctor where I found out that the pill that I've been on is working, so I won't have to go on insulin :D My sinuses threw me more issues, I had to go on prednisone, but I think that already they are starting to go downhill again. I also came down with a pretty intense chest cold that I got antibiotics for. They knocked down the infection, but I really don't feel like I bounced back all the way. My body feels a bit weaker... I think that I'll probably need a hospital stay after we get back from Seattle... Yup, we're headed up to Seattle on Wednesday and getting home on Sunday. I promise to try my hardest to post stellar pictures. I also became an aunt again in the time that I haven't been posting. Matt's sister had a beautiful baby boy, who I cannot wait to meet in December when we go out to South Carolina for Christmas.
I know I've been missed :) I also need to share pictues of my BEAUTIFUL new bedroom set. My garden has also started to produce a lot of good food... mmmm food. Today is a lazy day on the couch... reserving my energy to have as much as possible for Seattle.
Love to all my friends...
Talana
I had a good birthday... that was over a month ago. I had a good visit with the diabetes doctor where I found out that the pill that I've been on is working, so I won't have to go on insulin :D My sinuses threw me more issues, I had to go on prednisone, but I think that already they are starting to go downhill again. I also came down with a pretty intense chest cold that I got antibiotics for. They knocked down the infection, but I really don't feel like I bounced back all the way. My body feels a bit weaker... I think that I'll probably need a hospital stay after we get back from Seattle... Yup, we're headed up to Seattle on Wednesday and getting home on Sunday. I promise to try my hardest to post stellar pictures. I also became an aunt again in the time that I haven't been posting. Matt's sister had a beautiful baby boy, who I cannot wait to meet in December when we go out to South Carolina for Christmas.
I know I've been missed :) I also need to share pictues of my BEAUTIFUL new bedroom set. My garden has also started to produce a lot of good food... mmmm food. Today is a lazy day on the couch... reserving my energy to have as much as possible for Seattle.
Love to all my friends...
Talana
Monday, July 14, 2008
Quick Update
I had a great weekend, a great birthday, and a good time all around. I'll post more later, but right now I'm recovering from my very full weekend!
Friday, June 6, 2008
Lazy Days but Relaxion Hard to Find
I know it's been awhile since I've updated. I apologize... in part, it's not because that I've been too busy, or too tired, or had nothing to say... I just haven't. It's hard to explain. In many ways I feel like I'm stuck in Groundhog Day. Each day with ever so slight changes, but the script plays out with the same arch's day in and day out.
I wake up in the "morning", rather it be morning at 11:30 am or 2 pm. I drag myself from bed, usually try to motivate myself to find food and do my meds. Some days I succeed, others I fail. If I have something to do that day, I head out in the world. Sometimes those days are amazing and great and happy. Others I don't feel good and they are painful and dreadful. I never know what I'll wake up to.
By 6pm I've usually ate, done meds, and possibly gone out for the day... or I've spent the day watching TV in bed. I start to think what I'll do for dinner for Matt and I, possibly get up and start cooking, or other days resign myself to something quickly thrown together as that is all the energy I can muster.
Evenings is when I'm usually at my best. I watch TV with Matt, I become more animated, more energized. I've always said I'm at my best after 7pm. I'll take my bath, do my meds, and feel good and happy for a few hours.
Then into the wee hours of the morning 1,2, 3 A.M., Matt and I curl up in bed, read, and go to sleep to start another day.
What's special about this script? It's full of my trying to accept me. Figuring out what I am still capable of doing. Pushing myself to do what I can. But struggling deeply to find acceptance when I can't do something. That's been the story of my life for the last year or so. I've always been so capable despite my health. I was able to exceed so many expectations of me. Now, I can't. Some days picking up clutter in the house is enough to wipe my energy for the day. And that is so hard for me to take. I don't like it, I don't want to accept it, but I really don't have a choice. I lash out at those that help me, I've never liked help in the first place, but now the fact that I need it hurts me deeply because it makes me realize how much I've slowly lost. It's said that you don't miss things until they are gone. Slowly, my physical abilities have wained... and I often question when things disappeared. Because they left me so slowly, I sometimes don't realize how much I can't do until I try and fail.
Given all that, I'm still trying and fighting. Really there is no choice. I'm working on accepting what I have... valuing it because things could be worse. I'll forever be grateful for how long my CF held off. What I was able to do that so many others were unable to do. I'll fight jealousy at those who still can operate like a normal person.
Quick Prayers and Blessings:
Nate, Tricia, and Gwyneth are home on the Outer Banks of North Carolina. Their story still amazes me. All the blessings, the grace of God, and strength in the darkest times.
My Grandmother is going in for gall bladder and hernia repair surgery on Monday. I'll be taking care of her for the most part. While I know that it should go fine, I'm naturally worried. She's 82, so any surgery is not taken lightly. Prayers are needed for her. I will try to be as nurturing as I can, something that does not always come easily to me.
Lastly, I leave you with a video from my beautiful Eva. Watch it. At 8 minutes, it is long, but so powerful. If you want an idea of what CF is like, then watch. Eva is living beautifully, thanks to the gift of life that she received last Fall.
I wake up in the "morning", rather it be morning at 11:30 am or 2 pm. I drag myself from bed, usually try to motivate myself to find food and do my meds. Some days I succeed, others I fail. If I have something to do that day, I head out in the world. Sometimes those days are amazing and great and happy. Others I don't feel good and they are painful and dreadful. I never know what I'll wake up to.
By 6pm I've usually ate, done meds, and possibly gone out for the day... or I've spent the day watching TV in bed. I start to think what I'll do for dinner for Matt and I, possibly get up and start cooking, or other days resign myself to something quickly thrown together as that is all the energy I can muster.
Evenings is when I'm usually at my best. I watch TV with Matt, I become more animated, more energized. I've always said I'm at my best after 7pm. I'll take my bath, do my meds, and feel good and happy for a few hours.
Then into the wee hours of the morning 1,2, 3 A.M., Matt and I curl up in bed, read, and go to sleep to start another day.
What's special about this script? It's full of my trying to accept me. Figuring out what I am still capable of doing. Pushing myself to do what I can. But struggling deeply to find acceptance when I can't do something. That's been the story of my life for the last year or so. I've always been so capable despite my health. I was able to exceed so many expectations of me. Now, I can't. Some days picking up clutter in the house is enough to wipe my energy for the day. And that is so hard for me to take. I don't like it, I don't want to accept it, but I really don't have a choice. I lash out at those that help me, I've never liked help in the first place, but now the fact that I need it hurts me deeply because it makes me realize how much I've slowly lost. It's said that you don't miss things until they are gone. Slowly, my physical abilities have wained... and I often question when things disappeared. Because they left me so slowly, I sometimes don't realize how much I can't do until I try and fail.
Given all that, I'm still trying and fighting. Really there is no choice. I'm working on accepting what I have... valuing it because things could be worse. I'll forever be grateful for how long my CF held off. What I was able to do that so many others were unable to do. I'll fight jealousy at those who still can operate like a normal person.
Quick Prayers and Blessings:
Nate, Tricia, and Gwyneth are home on the Outer Banks of North Carolina. Their story still amazes me. All the blessings, the grace of God, and strength in the darkest times.
My Grandmother is going in for gall bladder and hernia repair surgery on Monday. I'll be taking care of her for the most part. While I know that it should go fine, I'm naturally worried. She's 82, so any surgery is not taken lightly. Prayers are needed for her. I will try to be as nurturing as I can, something that does not always come easily to me.
Lastly, I leave you with a video from my beautiful Eva. Watch it. At 8 minutes, it is long, but so powerful. If you want an idea of what CF is like, then watch. Eva is living beautifully, thanks to the gift of life that she received last Fall.
Sunday, May 11, 2008
Long Absence!
Alright, so I never intended to not post this long, but I've been out living life!
Since I last posted:
* I had a small bout of depression when I realized how much my health has slipped in three years time. I have always had small bouts like this where I fall into depression suddenly, then snap out just as suddenly. I'm back to normal me.
* I've decided that Elton John, Billy Joel, and Eric Clapton have a conspiracy to dislocate a finger of mine as I've been working on learning Circle of Life, Written in the Stars, Piano Man, and Wonderful Tonight on the piano. Hard but rewarding work. I've always thought of Piano Man as one piece I wanted to learn but never thought I would be good enough. I guess I am!
* Went back to the diabetes doctors. Since I had several high, but not starling high blood sugars, they decided that I would be fine without insulin, but I needed some form of management. So I was placed on Januvia, and newer pill designed for Type II diabetes. It has seemed to lower my blood sugars which is a super good thing.
* Went to CF clinic. My lung function was marginally down and my weight was the same. Lynn and I agree that with the combination of the weather changes, allergies, and a slight cold, my lungs took a beating, but were also doing surprisingly well. We decided that I probably would not need oral antibiotics, but she wants me to come back in a month to make sure that I am still remaining well.
* I shook Obama's hand! I've been interested in and inspired by him since his 2004 speech. He embodies much of my ideals in politics. I went and saw him his last swing through Eugene. I almost didn't go this time, but a strong voice in the back of my head told me to go. I was having trouble breathing when I arrived and I knew that walking the several blocks to the end of the line would be very painful. I spoke to some volunteers and staffers, and they allowed me to wait at the gate and cut to the front of the line... and I was right in front, 15 ft away from him while he spoke... then he came and shook hands.
* Otherwise, all is good. I should be posting pictures soon of my garden :) I have done a lot of work and have been rewarded with all of my veggie seeds sprouting and beginning to grow.
Since I last posted:
* I had a small bout of depression when I realized how much my health has slipped in three years time. I have always had small bouts like this where I fall into depression suddenly, then snap out just as suddenly. I'm back to normal me.
* I've decided that Elton John, Billy Joel, and Eric Clapton have a conspiracy to dislocate a finger of mine as I've been working on learning Circle of Life, Written in the Stars, Piano Man, and Wonderful Tonight on the piano. Hard but rewarding work. I've always thought of Piano Man as one piece I wanted to learn but never thought I would be good enough. I guess I am!
* Went back to the diabetes doctors. Since I had several high, but not starling high blood sugars, they decided that I would be fine without insulin, but I needed some form of management. So I was placed on Januvia, and newer pill designed for Type II diabetes. It has seemed to lower my blood sugars which is a super good thing.
* Went to CF clinic. My lung function was marginally down and my weight was the same. Lynn and I agree that with the combination of the weather changes, allergies, and a slight cold, my lungs took a beating, but were also doing surprisingly well. We decided that I probably would not need oral antibiotics, but she wants me to come back in a month to make sure that I am still remaining well.
* I shook Obama's hand! I've been interested in and inspired by him since his 2004 speech. He embodies much of my ideals in politics. I went and saw him his last swing through Eugene. I almost didn't go this time, but a strong voice in the back of my head told me to go. I was having trouble breathing when I arrived and I knew that walking the several blocks to the end of the line would be very painful. I spoke to some volunteers and staffers, and they allowed me to wait at the gate and cut to the front of the line... and I was right in front, 15 ft away from him while he spoke... then he came and shook hands.
* Otherwise, all is good. I should be posting pictures soon of my garden :) I have done a lot of work and have been rewarded with all of my veggie seeds sprouting and beginning to grow.
Saturday, April 19, 2008
Update
I know it's been a few days since I posted. Honestly, I have not been feeling great. Tired especially, some fevers, some belly junk, a little more coughing. Just generally not feeling great. Something that happens quite often when the weather changes very quickly, like it has here this week. Last Saturday it was 84 degrees. Right now as I type this, it's below freezing, and our high today is supposed to be like 42... half of last week. Ridiculous. I need to do some chest therapy, it's just so hard when I don't feel good :(
I'll be back though, I will bounce back.
I'll be back though, I will bounce back.
Thursday, February 7, 2008
Better
So I'm feeling better. I still have congestion in my chest, but I think I am on the uptrend. I've been doing my vest for an hour and a half to two hours the last few days instead of my usual forty minutes. Trying to beat all the junk out of there. I also started back on my TOBI for the month, which is an inhaled antibiotic and that should be helping as well. :)
I'll be posting more in my history soon...
Also no question Wednesday yesterday as no one gave me any!
I'll be posting more in my history soon...
Also no question Wednesday yesterday as no one gave me any!
Subscribe to:
Posts (Atom)