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Thursday, November 12, 2009
Wednesday, November 11, 2009
Please pray for my Eva tonight... she's in the hospital, not able to breathe... she needs new lungs. 2 year post transplant they are failing her. This girl means the world to me... below is Jess, Eva, and I at the Vancouver premier of the documentary about her transplant 65_Red Roses.
Tuesday, November 10, 2009
Thursday, November 5, 2009
CF Sucks
Already this month we've lost two in the CF community... two... and we're barely 5 days in.
Will's journey is one that I've been following for some time. He desperately needed lungs and received them over a year ago. Sadly, his body never really took well to them. He spent months on the vent, clinging to life, lost most of his sight, and also had severe kidney damage in the process. But rather than quitting, he kept fighting. He made it off that vent. He made it home. He made it to basketball games, his love, and he got to cuddle his sweet niece. And then today, he's gone. Nothing was easy for him, but I've learned so much through is blog about living to the best that you can with what you have. Will showed that tenfold.
Lauren was someone who was very involved in the CF forums, using her voice to offer encouragement, faith, and knowledge to other cystics. Her and her husband were an amazing example of a relationship that worked with all of the hassles of CF.
There are also so many that are so desperately sick right now that need prayers. One of my dear chat friends is on the vent, another is in the hospital with high fevers, and so many others are struggling with complications... it just freaking sucks.
Will's journey is one that I've been following for some time. He desperately needed lungs and received them over a year ago. Sadly, his body never really took well to them. He spent months on the vent, clinging to life, lost most of his sight, and also had severe kidney damage in the process. But rather than quitting, he kept fighting. He made it off that vent. He made it home. He made it to basketball games, his love, and he got to cuddle his sweet niece. And then today, he's gone. Nothing was easy for him, but I've learned so much through is blog about living to the best that you can with what you have. Will showed that tenfold.
Lauren was someone who was very involved in the CF forums, using her voice to offer encouragement, faith, and knowledge to other cystics. Her and her husband were an amazing example of a relationship that worked with all of the hassles of CF.
There are also so many that are so desperately sick right now that need prayers. One of my dear chat friends is on the vent, another is in the hospital with high fevers, and so many others are struggling with complications... it just freaking sucks.
Wednesday, November 4, 2009
H1N1 Shot!
So I missed yesterday... I chose to believe that the 3rd of November never existed.
Today, I had an adventure... I went to my local H1N1 shot clinic!
The county health department was offering shots for high risk groups at local schools this week. Knowing that we have MANY CFers very sick with H1N1 and some that have even lost their battle, I really wanted to get my shot ASAP. The clinic at the high school a mile down the road was open from 2-5. I showed up at noon... and was already about 70 people back in line.
I took my seat, between two parents getting shots for their asthmatic kids. I sat, played on my iphone, knitted (to which I was asked if I was doing needlepoint, ah men), and talked some with those around me.
Then some county health officials went down the line and asked why you needed the shot and handed out consent forms, based on if you were in the nasal mist category or the shot category. Cystics are the shot category, since even the weakened virus is not good for us.
I was hoping that if I had paperwork in hand, then I would be guaranteed a shot... but the county had a big debacle early this week because the city they were in gave out tickets, which the county didn't offer and they had people fighting over vaccine, so I took nothing for granted.
At a little after 2, after 2 hours in line, the line started moving forward. Those at the back of the line were turned away because they didn't have enough vaccine, as shown by they didn't have any more forms. Hope went up in me that I would get my shot.
Then slowly, slowly, slowly the line moved forward... finally I could see where they were giving the shot. I had to stand for forty five minutes, waiting for the backlog of people in front of me to clear, then I got screened again. Then in the line of screened people. We all were chatty here, where one old man gave me a line I think all us cystics should bother... "I have lungs like a parakeet!" It's so true... after a bit of chatting, then waiting... I GOT MY SHOT!
I'm proud to report I have not oinked yet.
So four hours,
Today, I had an adventure... I went to my local H1N1 shot clinic!
The county health department was offering shots for high risk groups at local schools this week. Knowing that we have MANY CFers very sick with H1N1 and some that have even lost their battle, I really wanted to get my shot ASAP. The clinic at the high school a mile down the road was open from 2-5. I showed up at noon... and was already about 70 people back in line.
I took my seat, between two parents getting shots for their asthmatic kids. I sat, played on my iphone, knitted (to which I was asked if I was doing needlepoint, ah men), and talked some with those around me.
Then some county health officials went down the line and asked why you needed the shot and handed out consent forms, based on if you were in the nasal mist category or the shot category. Cystics are the shot category, since even the weakened virus is not good for us.
I was hoping that if I had paperwork in hand, then I would be guaranteed a shot... but the county had a big debacle early this week because the city they were in gave out tickets, which the county didn't offer and they had people fighting over vaccine, so I took nothing for granted.
At a little after 2, after 2 hours in line, the line started moving forward. Those at the back of the line were turned away because they didn't have enough vaccine, as shown by they didn't have any more forms. Hope went up in me that I would get my shot.
Then slowly, slowly, slowly the line moved forward... finally I could see where they were giving the shot. I had to stand for forty five minutes, waiting for the backlog of people in front of me to clear, then I got screened again. Then in the line of screened people. We all were chatty here, where one old man gave me a line I think all us cystics should bother... "I have lungs like a parakeet!" It's so true... after a bit of chatting, then waiting... I GOT MY SHOT!
I'm proud to report I have not oinked yet.
So four hours,
Monday, November 2, 2009
New Kitten
One of the many things to happen during my neglect of the blog was finding a new and wonderful little kitten!
Our house backs up on a small green way that is a city park. We noticed this summer that a very small kitten was coming out of the park into our backyard. She was terrified of us, but also very curious about us humans, and would sometimes show off, playfully flirting from the safe distance of 20 feet away, then 15 feet, then 10. Through about three weeks, she slowly trusted being around us more, until she was coming up on our porch to eat the dry food we provided. Matt worked very hard with her to gain her trust, and slowly but surely, we finally were able to touch her. Around this time, she started limping very badly... and a pack of raccoons was stalking our porch at night, so we scooped her up and brought her inside. To say that she loves her new life would be an understatement. She loves cuddling with us, playing fetch, and just living life. She has an endless fascination with human food, and is unafraid to try any new taste... going as far as trying to steal white chocolate from my purse, popcorn from my bowl, and cheetos from the bag... all of which rank high on her list of best foods in the world.
Our house backs up on a small green way that is a city park. We noticed this summer that a very small kitten was coming out of the park into our backyard. She was terrified of us, but also very curious about us humans, and would sometimes show off, playfully flirting from the safe distance of 20 feet away, then 15 feet, then 10. Through about three weeks, she slowly trusted being around us more, until she was coming up on our porch to eat the dry food we provided. Matt worked very hard with her to gain her trust, and slowly but surely, we finally were able to touch her. Around this time, she started limping very badly... and a pack of raccoons was stalking our porch at night, so we scooped her up and brought her inside. To say that she loves her new life would be an understatement. She loves cuddling with us, playing fetch, and just living life. She has an endless fascination with human food, and is unafraid to try any new taste... going as far as trying to steal white chocolate from my purse, popcorn from my bowl, and cheetos from the bag... all of which rank high on her list of best foods in the world.
Sunday, November 1, 2009
Lots to talk about...
More in the morning, but count this as 1/30 in my attempt to blog a little every day of November....
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